Month: October 2015

A Reminder: This is not our Home

I used to assume disappointments are like excitements. After you receive so many, so often…the impact becomes minimal. But there is no numbing or normalizing qualities about disappointments, at least none I have found.   This is the newest image of Meg’s brain. The white part is the cyst, and also now, the fluid that Read More …

The Exhaustion of Waiting

It feels like we spend a lot of time waiting. Waiting to get better, waiting to see what happens, waiting for tests, waiting for results, and waiting for life to be able to go on. Today we waited without any answers.Time passes ever so slowly while waiting. I don’t know why I can’t wait more Read More …

Finding Grace in the Unknown

I knew something was wrong when a nurse from Omaha Children’s called this morning asking for contact information for Meg’s neurosurgeons.I sat on the floor with my head in my hands for the rest of the conversation. Hearing something was wrong with the scan, the radiologist didn’t know what an area was, and no one Read More …

Jesus Understands Exhaustion

Meg was up a lot during the night last night, and today hasn’t gone any better. She cries certain her head is going to puke, and it won’t stop pounding.Tired and exhausted we drove to Omaha Children’s. Staying in communication with Houston’s Neurosurgical team, it was decided to do an MRI and see what’s going Read More …

Living Up To Our Position

Tears filled Evan’s eyes as he wrapped his arms around my waist, and said, “I’m so happy Meg is still herself after surgery. I was so worried Mom, because I didn’t know if she would be.”It almost hurt to hear. Sure, I knew he was worried. I knew he didn’t know what was going to Read More …

When Things Could Be Better

You know you’ve been gone too long, when your bed doesn’t feel like your bed anymore. It’s taken a bit for Meg to adjust to being home again and recover from the trip. She continues to have severe pain episodes, and it’s apparent when her cranial pressure fluctuates high during the day. She’s comforted by Read More …

When God’s Got Us

There are times when chaos dies and I find myself in the beauty of silence. It is usually there, or here, lying next to my sleeping child, when I have time to think about what’s going on.I’ve faced a lot of days I know are too much for me. Days I have to keep going, Read More …